Conexões empoderadoras: fortalecendo Comunidades Virtuais de Apoio com estratégias de design
Abstract
Este artigo explora o papel do Design na criação e facilitação das Comunidades Virtuais de Apoio (CVAs), destacando a importância do apoio social como ferramenta de empoderamento individual e coletivo. Com o avanço da web 2.0 e a expansão das redes sociais, as CVAs se afirmam como espaços fundamentais para troca de conselhos e experiências, promovendo resiliência e empoderamento. Através de uma abordagem interdisciplinar que integra design, psicologia e tecnologia da informação, o estudo propõe estratégias para aprimorar a experiência dos membros nas CVAs, fortalecendo a comunidade. Enfatiza-se a necessidade de estratégias de design inovadoras para melhorar a criação, interação e gestão dessas comunidades, contribuindo significativamente para a área de gestão de comunidades, pesquisa e design.
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ANDRADE, G. R., & VAITSMAN, J. Apoio social e redes: conectando solidariedade e saúde. Ciência e SaúdeColetiva, v. 7, n. 4, pp. 925-934. 2002
ANDY, A., & ANDY, U. Understanding Communication in an Online Cancer Forum: Content Analysis Study. JMIR Cancer, v. 7, n. 3. 2021
ARGUELLO, J. et al. Talk to Me: Foundations for Successful Individual-Group Interactions in Online Communities. CHI 2006.
BALKHI, A. M. et al. The diabetes online community: the importance of forum use in parents of children with type 1 diabetes. Pediatr Diabetes, v.15, n. 6, 2014. pp. 408-415
BARAK, A. et al. Fostering empowerment in online support groups. Computers in Human Behavior, v. 24, n. 5, pp. 1867-1883. set., 2008
CASELLATO, G. Luto por perdas não legitimadas na atualidade.São Paulo: Summus editorial, 2020
COHEN, G. L., & SHERMAN, D. K. The Psychology of Change: Self-Affirmation and Social Psychological Intervention. The Annual Review of Psychology, v. 65. 2014. pp. 333-378. doi:10.1146/annurev-psych-010213-115137. 2014
COULSON, N. S. et al. The Pros and cons of getting engaged in an online social community embedded within digital cognitive behavioral therapy for insomnia: Survey among users. Journal of Medical Internet Research, v. 18, n. 4. 2016
DUNNE, J. H. et al. Facebook as a platform for collecting women’s birth stories: Supporting. Emotion, Space and Society, v. 42. 2022
FREITAS, B. “Toda mãe de autista sabe do que eu estou falando”: narrativas compartilhadas por mães de autistas em uma plataforma digital de vídeos. Dissertação (mestrado). PPG Saúde da Criança e da Mulher. Rio de Janeiro: IFF/Fiocroz, 2020.
KOHTALA, C. & WALLS, J. Designing care and communing into a code of conduct. Nordes 2019: whocares? N.8, 2019.
LOPES, A. & FRACOLLI, L. Revisão sistemática de literatura e metassíntese qualitativa: considerações sobre sua aplicação na pesquisa em enfermagem. TextoContexto Enfermagem, v. 17, n.4. 2008. pp. 771-778
LWIN, M. O. A Digital Mobile Community App for Caregivers in Singapore: Predevelopment and Usability Study. JMIR Nurs, v. 4, n. 2. Abr-Jun 2021.
MALLOCH, Y. Z., & TAYLOR, L. D. Emotional Self-Disclosure in Online Breast Cancer Support Groups: Examining Theme, Reciprocity, and Linguistic Style Matching. Health Communication, v. 34, n. 7. 2019. pp. 764-773.
MELLO, M. C. & VASCONCELOS-SILVA, P. R. Uso de comunidades virtuais no suporte a portadoras de câncer de mama. Ciência & Saúde Coletiva, v. 23, n. 10, 2018. pp. 3347-3356.
MERTAN, E. et al. An investigation of the information provided to the parents of young people with mental health needs on an internet forum. Internet Interventions, v. 23, 2021.
MOTTA, M. A. S. O sentido do empoderamento na publicidade da Avon. Memorare, v. 7, n.3. 2020. pp. 50-66.
PARK, A., & CONWAY, M. Longitudinal Changes in Psychological States in Online Health Community Members: Understanding the Long-Term Effects of Participating in an Online Depression Community. J Med Internet Res, v. 19, n. 3. mar 2017.
PENNEBAKER, J. W. Psychological Aspects of Natural Language Use: Our Words, Our Selves. Annual Review of Psychology, v. 54. 2003. pp. 547-577.
PERKINS, V. et al. Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users' Experiences. Journal of Medical Internet Research, v. 11 n. 22. nov 2020.
PETRIČ, G. Perceived quality of conversations in online communities: conceptual framework, scale development, and empirical validation. CyberpsycholBehavSocNetw. 2014 Feb;17(2):82-90.
RENAUD, L. & CHERBA, M. Apoio social on-line: questões teóricas, metodológicas, benefícios sociais e recomendações. Saúde Debate, v.47, n. 137, 2023. pp. 256-271
RUSSELL, D. J. et al. Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability. J Med Internet Res, v. 18, n. 11. nov 2016.
SALEHI, A. et al. Strengthening positive social pathways via digital social applications in individuals with social skills deficits: A scoping review. International Journal of Social Psychiatry, v. 67, n. 6. 2021
SCHERR, S. A. et al. The Presumed Happiness of the Smiling Pile of Poo – How Emojis are Perceived by People. Lecture Notes in Computer Science, v. 12774. 2021 pp. 149-166.
SCHULTZE, S. Comunidades online, apoio social e transversalidade de saberes e práticas de saúde. iCom+D – Comunicação e Design: Inovação em múltiplas abordagens. v. 6, n. 1, 2023. pp. 188-212
SKEEN, S. J. et al. Integrating Natural Language Processing and Interpretive Thematic Analyses to Gain Human-Centered Design Insights on HIV Mobile Health: Proof-of-Concept Analysis. JMIR Hum Factors, v. 9, n. 3. 2022
SKOUSEN, T. et al. Successful Moderation in Online Patient Communities: Inductive Case Study. Journal Medical Internet Research,v. 22, n. 3. 2020.
SMIT, D. et al. A Newly Developed Online Peer Support Community for Depression (Depression Connect): Qualitative Study. Journal Medicine Internet Research, v. 23, n.7. 2021.
VAN NGUYEN, L. T. Collective empowerment in online communities: conceptualization, scale refinement, and validation. Journal of Marketing Theory and Practice. 2020
VERBENE, S. et al. Analyzing Empowerment Processes Among Cancer Patients in an Online Community: A Text Mining Approach. JMIR Cancer, v. 5, n. 17. Abr. 2019
WALLACE, P. The psychology of the Internet. Nova York: Cambridge University Press, 2016
WANG, X. et al. Analyzing and Predicting User Participations in Online Health Communities: A Social Support Perspective. J Med Internet Res,v. 19, n. 4. 2017
WANG, Y. et al. Eliciting and Receiving Online Support: Using Computer-Aided Content Analysis to Examine the Dynamics of Online Social Support. J Med Internet Res, v. 17, n. 4. 2015
WICKS, P. Scaling PatientsLikeMe via a "Generalized Platform" for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising. J Med Internet Res, v. 20, n. 5. Mai. 2018
YAO, Z. et al. Do Informational and Emotional Elements Differ between Online Psychological and Physiological Disease Communities in China? A Comparative Study of Depression and Diabetes. International Journal of Environmental Research and Public Health, v. 19, n. 4. 2022.
YOUNG, C. Community Management That Works: How to Build and Sustain a Thriving Online Health Community. J Med Internet Res, v. 15, n. 6. 2013
DOI: https://doi.org/10.35522/eed.v32i1.1884
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Revista Estudos em Design, Rio de Janeiro, RJ, Brasil, ISSN Impresso: 0104-4249, ISSN Eletrônico: 1983-196X
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